The Whole Caregiver Podcast

Empowering Caregivers: Insights from the Caregiver Nation Summit

Join Erna and Megan in a special December episode as they discuss the transformative experiences and insights gained from the Caregiver Nation Summit. Recorded amidst holiday preparations, this episode highlights the significance of advocacy and awareness in family caregiving.
Megan shares her journey as a participant at the Summit, organized by the National Alliance for Caregiving, an advocacy group focused on family caregiving research and awareness. She reveals the unique aspects of this conference, which emphasized advocacy in tandem with traditional research, and how it brought together people from varied backgrounds, including policymakers and individual advocates.
Listen to inspiring stories and discussions on the universal nature of caregiving, the importance of narrative change, and powerful moments when personal stories were used to advocate for policies like the Older Americans Act. Megan and Erna emphasize the role each of us plays at our community level to support caregivers and influence legislative decisions.
This episode reminds us of the strength in collective experiences and the potential to make caregiving a normalized and supported aspect of life. Tune in to feel empowered and informed about how you can contribute to the caregiving community, regardless of your current caregiving status.
Senate Bill Information for Older Americans Act Reauthorization: https://www.congress.gov/bill/118th-congress/senate-bill/4776
Administration for Community Living Older Americans Act Information: https://acl.gov/OAArule
National Alliance for Caregiving Information:
https://www.caregiving.org/research/caregiving-in-the-us/caregiving-in-the-us-2020/
Caregiver Nation Summit Recordings:
https://www.youtube.com/playlist?list=PLqooqFMD2JDsSNai8JCNe8rGPymVEVHcR
 
 

Unmasking the Caregiver: Truths, Assumptions, and Emotional Journeys

Join hosts Erna and Megan in a compelling episode of The Whole Caregiver as they welcome Ellen Patnaude, an award-winning author and coach, to share her candid caregiving journey. Ellen opens up about the assumptions she had before stepping into the caregiving role and the emotional complexities that followed.
In a heartfelt conversation, Ellen discusses the misconceptions surrounding caregiving and the internal and external pressures caregivers face. She emphasizes the importance of self-compassion and the need for more honest discussions about the realities of caregiving.
Listeners will also hear about Ellen's book, "You're Not Doing It Right," which sheds light on the raw truths of caregiving, offering a voice to those who feel unseen. Discover how Ellen's journey can inspire and validate your own experiences in this powerful episode.
For more information on Ellen's book, please check out the links below:
To buy a signed copy (paperback or hardcover) from Ellen directly, AND to download a resource list and see photos of her family's journey: https://patnaudecoaching.com/patnaude-coaching-books/not-doing-it-right/
To buy the book from Amazon, in paperback, hardcover, or on Kindle: https://www.amazon.com/Youre-Not-Doing-Right-Unpredictable/dp/B0D2Z5H7BH/?_encoding=UTF8&pd_rd_w=jpU4W&content-id=amzn1.sym.e5c4b41c-5fcc-40aa-ba1a-d4f042d962e8&pf_rd_p=e5c4b41c-5fcc-40aa-ba1a-d4f042d962e8&pf_rd_r=139-7026157-9939007&pd_rd_wg=vT1Ta&pd_rd_r=4e838b52-2998-40e9-ae30-99c7796090a1&ref_=aufs_ap_sc_dsk
To listen to a free sample of the audiobook and order it from the platform that gives authors the most credit for their own work: https://awesound.com/a/youre-not-doing-it-right
The audiobook is also now available on Audible, Spotify, Barnes & Noble, Nook, and more.

Embracing the Power of the Reset

In this special episode, Erna shares a reflection in honor of National Caregiver Month, emphasizing the importance of hitting the reset button in our lives. Through a personal story of hiking an active volcano in Sicily with her husband, Erna explores how this challenging yet rewarding experience allowed her to confront fears and gain new insights.
The episode delves into the emotional journey from the somber start of summer, marked by the loss of a beloved niece, to the joyous celebration of a family wedding. Erna highlights the profound impact of stepping away from routine and embracing new adventures, ultimately finding gratitude and joy amidst life's challenges.
Listeners are encouraged to find their own way to reset, whether through travel or simple changes in daily life, to gain a fresh perspective and rejuvenate their spirit. Tune in to discover the transformative power of taking time for yourself and embracing life's unexpected adventures.

Finding Balance: The Caregiver's Journey

In this heartfelt episode of "The Whole Caregiver," host Megan Hebden shares her personal reflections on the challenges and triumphs of family caregiving. As Family Caregiving Month is celebrated, Megan opens up about her own struggles in balancing numerous responsibilities, from hosting the podcast to caring for her family, including a father with Alzheimer's disease.
Drawing from her own experiences and a well-known biblical story of Mary and Martha, Megan explores the importance of finding a balance between caring for others and taking care of oneself. She candidly discusses the difficulties of asking for help, the societal gaps in support systems, and the need to acknowledge personal needs.
Listeners are encouraged to explore hidden sources of support and to let go of the notion of being a martyr in caregiving. Megan also highlights ongoing efforts in caregiving research aimed at making resources more accessible. Tune in for an honest conversation about the reality of caregiving and the significance of self-compassion.
If you do need help, consider the following resources:
2-1-1
Area Agencies on Aging
Churches in your community (even if you are not religious--some resources are for the community)
Family (sometimes boundaries need to be drawn and specific requests need to be made)
 

Preparing for Safety: Aging Loved Ones and Caregiver Insights

Join hosts Erna and Megan in the final episode of The Whole Caregiver podcast as they welcome back Susan Chaityn Lebovits. Dive into a comprehensive discussion on ensuring the safety of aging loved ones, emphasizing early preparation. Susan shares practical tips on home modifications, from installing grab bars to rearranging household items for accessibility.
Discover strategies to introduce safety measures to loved ones and learn the importance of regular health check-ups, including eye and hearing tests. The episode highlights the significance of power of attorney, healthcare directives, and POLST forms in planning for end-of-life care. Gain valuable insights and resources to support caregivers on their journey, ensuring they are not alone in navigating the complexities of aging care.
You can find Susan at Ease into Aging: Susan@EaseintoAging.com
Here is the helpful information Susan compiled for our episodes: 
Secure your loved one with a home care organization before there’s an emergency.At the least, do the research and have the information ready!
Maintaining social connections is critical to healthy aging for:● Sense of community● Strengthening brain synapses to maintain memory● Physical activity (getting to and from event)
Some seniors avoid socializing. Keep in mind that what may appear as being stubborn could actually be:● Social anxiety● Concern of finding a toilet● Painful to walk● Fear of technology● Lack of transportation● Hearing loss● Vision loss
Have an annual vision check to ensure safety.
Have an annual hearing test to avoid social isolation.
Home Safety Checklist
Find Caregiving
Caregiving Plan to Download and Print
Websites and Apps to Aid Families with Caregiving Support
Find a Geriatric Care Manager
Moving Support- Find a Senior Moving Manager
End of Life Planning
POLST Forms

Navigating Communication Challenges in Caregiving

Welcome back to another enlightening episode of "The Whole Caregiver" with your hosts, Erna and Megan. In this second installment of our series with Susan, we delve deep into the intricacies of communication as our loved ones age. Susan shares her wealth of experience and insights on the physical and emotional changes that impact communication, offering practical techniques to improve interactions with aging parents.
Throughout the episode, Susan highlights the importance of understanding the emotional versus cognitive changes in our loved ones and how these affect their ability to express and process information. From mobility issues to social isolation, learn about the barriers that can hinder effective communication and how to overcome them.
Discover strategies to help aging parents maintain their dignity and independence, while also ensuring their safety and well-being. Explore the role of social connections in enhancing emotional and physical health, and hear real-life examples of how caregivers can navigate challenging situations with empathy and understanding.
Tune in for valuable takeaways on utilizing geriatric care managers, community resources, and innovative solutions to support caregivers and their loved ones. This episode is a must-listen for anyone navigating the complexities of caregiving and seeking to foster meaningful communication with their aging family members.
You can find Susan Chaityn Lebovits at Ease into Aging: Susan@EaseintoAging.com
Here is the information Susan compiled for our episodes:
Secure your loved one with a home care organization before there’s an emergency.At the least, do the research and have the information ready!
Maintaining social connections is critical to healthy aging for:● Sense of community● Strengthening brain synapses to maintain memory● Physical activity (getting to and from event)
Some seniors avoid socializing. Keep in mind that what may appear as being stubborn could actually be:● Social anxiety● Concern of finding a toilet● Painful to walk● Fear of technology● Lack of transportation● Hearing loss● Vision loss
Have an annual vision check to ensure safety.
Have an annual hearing test to avoid social isolation.
Home Safety Checklist
Find Caregiving
Caregiving Plan to Download and Print
Websites and Apps to Aid Families with Caregiving Support
Find a Geriatric Care Manager
Moving Support- Find a Senior Moving Manager
End of Life Planning
POLST Forms

Navigating the Caregiving Journey: Insights and Support

Join hosts Erna and Megan in this heartfelt episode of The Whole Caregiver, where they welcome their friend and guest, Susan Chaityn Lebovits. Susan shares her personal and professional caregiving journey, providing insights into the challenges and solutions she encountered along the way.
Susan recounts her experience of stepping up to care for her mother after her father's passing, highlighting the importance of support systems and addressing the emotional and practical aspects of caregiving. With stories of empathy and community, Susan emphasizes the need for early planning and the benefits of building a supportive network before crises arise.
The episode also explores Susan's professional path, including her initiative, Ease Into Aging, aimed at supporting caregivers and corporations. Erna, Megan, and Susan delve into the significance of asking for help and fostering a broader community of care.
Tune in to discover valuable takeaways for caregivers, including the importance of seeking help, preparing for the unexpected, and embracing a village approach to caregiving. This episode is a touching reminder of the strength found in community and the power of empathy in caregiving.
Susan shared some important insights and resources with us that we will include in our show notes for the next three episodes.
You can find Susan at Ease into Aging: Susan@EaseintoAging.com
Secure your loved one with a home care organization before there’s an emergency.At the least, do the research and have the information ready!
Maintaining social connections is critical to healthy aging for:● Sense of community● Strengthening brain synapses to maintain memory● Physical activity (getting to and from event)
Some seniors avoid socializing. Keep in mind that what may appear as being stubborn could actually be:● Social anxiety● Concern of finding a toilet● Painful to walk● Fear of technology● Lack of transportation● Hearing loss● Vision loss
Have an annual vision check to ensure safety.
Have an annual hearing test to avoid social isolation.
Home Safety Checklist
Find Caregiving
Caregiving Plan to Download and Print
Websites and Apps to Aid Families with Caregiving Support
Find a Geriatric Care Manager
Moving Support- Find a Senior Moving Manager
End of Life Planning
POLST Forms

Bonus: Megan Shares About Current Self-Care Focus

Join Megan for a bonus episode focusing on the importance of self-care during life's many transitions. Having recently moved and faced with a new environment, Megan shares her personal journey of managing anxiety and OCD, particularly the challenges associated with returning to a culture that contributed to her struggles with scrupulosity.
Discover how a health coaching session helped Megan realize the weight of her responsibilities and the importance of acknowledging feelings of overwhelm. This episode serves as a reminder that caregiving, while rewarding, can be exhausting and it is okay to seek support when needed.
Megan encourages listeners to validate their feelings, embrace both positive and challenging experiences, and find solidarity in shared journeys. Tune in to hear her reassuring message that you're not alone, and we're all doing the best we can.

Season 2: The Ongoing Challenges of Caregiving--Erna

In this episode, Megan interviews Erna about the ongoing challenges she encountered while caring for her mom. Erna described the following challenges:
1. Scheduling and Traveling: By trying to do everything, Erna realized she had not planned time for herself. Because of this, she made herself sick. 
2. Asking for Help: Due to the wise words of a therapist, Erna learned that she was doing too much, and she could rely on others to help with her mom. She used an organization called Visiting Angels: https://www.visitingangels.com/.
Episode take homes: It is okay to not be there all of the time or do everything. Also, get therapy if you need it :). 
Don't forget to find us on Facebook at The Whole Caregiver or follow us on Instagram @thewholecaregiver.
Email us any questions, ideas, or feedback at: caregiverrevolution@gmail.com

Season 2: The Ongoing Challenges of Caregiving--Megan

In this episode, Erna interviews Megan about the consistent challenges related to family caregiving in her life. Megan identifies:
1. Sleep (or lack of)
2. The difficulty of transitioning care during a move. 
With caregiving, Megan has lived in four different states and has navigated the health and school systems with her kids. A big surprise with this current move was the nurse ratios at the school, which are far below the national recommendations of 1 nurse per 750 children as a minimum. With the growing complexity of child health, these ratios should be even further reduced. Here is more information about school nursing and safe ratios, if you want to reach out to school boards and state legislators:
https://publications.aap.org/pediatrics/article/137/6/e20160852/52405/Role-of-the-School-Nurse-in-Providing-School
https://www.nasn.org/nasn-resources/professional-practice-documents/position-statements/ps-workload
Our take home is to not forget the power of your voice, and advocate for the helpers such as teachers and nurses among us. 
Don't forget to find us on Facebook at The Whole Caregiver or follow us on Instagram @thewholecaregiver.
Email us any questions, ideas, or feedback at: caregiverrevolution@gmail.com